Friday, February 5, 2016
For now her team wants to just continue monitoring and put her in endocrinology for the hormone issues and physical therapy for her other issues. Since there are no local pediatric physical therapists we will be going to Stanford once a month and then I will be doing the exercises with her at home instead of going once a week. I am thankful she is able to avoid surgery and chemo but I must admit I was hoping for one or two issues to self resolve. It is so hard to live in this constant state of anxiety, unsure of what the future holds. If our little warriors have taught me anything it is to enjoy the day you have today and never look too far ahead.
Thank you for all your continued prayers for Gracie. Emma is next up, on March 9th she has a minor surgery and an MRI of her head, spine, and pelvis. We are slightly concerned she might have a new tumor in her pelvis. It will be a very long day, starting in the OR and ending in the Imaging room.
On a positive note, Gracie's Make a Wish should be happening soon. We are still waiting to hear back on which wish they will grant and the time frame. I am hoping we can do it sometime late Spring before school gets out. That is a perk of homeschooling, we can vacation in the off season!