The story of Emma's journey of neurofibromatosis brain tumors and blindness.
Friday, December 22, 2017
My Emotional Wall
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It all started Christmas Eve four years ago. The day our lives changed forever. Over these years I have built a solid wall that protects me ...
Saturday, November 25, 2017
Is that ELLEN?
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Thanksgivng day Holidays... Those should be a happy time but for us Christmas brings up memories of Emma's first MRI and diagnosis...
Thursday, May 11, 2017
Cancer Will Break Your Heart
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Cancer Will Break Your Heart...literally. When Emma was diagnosed I was a healthy person. I had no need for a doctor's office and I wa...
Saturday, January 7, 2017
Love Is An Open Door
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Emma's new medication is a long journey, I thought it was time to fill you all in. Emma has debilitating PTSD and ADHD as well as ODD...
Wednesday, December 21, 2016
How to Help When you Don't Know How
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It's so unfair. Over and over in my head I hear, "It's so unfair." It is no fair that kids who have not had a chance to ...
Friday, December 2, 2016
Energy Drain
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The last week and a half have been Hell. I have relearned some harsh lessons and I am still reeling from the lack of empathy. I will not go ...
Saturday, November 12, 2016
Sarcastic Christmas
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Getting suited up Two blog posts sit in my "archieve" folder...too raw to share. I have been on a roller coaster of emotions ...
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