Emma's main doctor who does her "road map" (a plan of medications with a timeline and dosage) is out of the country for another two weeks. He is only reachable by email. The doctor we saw yesterday told me that in these cases they typically pretreat, meaning, they continue to give her the chemo but give her the meds for an allergic reaction first...does this sound crazy to anyone else? I know I did not go to medical school but giving a child a medication that we KNOW causes a severe
|Once she was stable, it was much worse!|
For today and perhaps the next day or two we will be watching her for another allergic reaction because she got about 1/3 of her chemo before we stopped. It is still in her system. They sent me home with medication in case she gets a flair up. Needless to say I will not be doing much relaxing or sleeping until I know she is safe for good.
Long day. Just breathe.