Thursday, May 28, 2015

It Means...

"It is always darkness before the dawn." In my life I have found those immortal words to be true. The only problem arises when you cannot find the darkest point. You think you hit rock bottom but another thing comes along.

Gracie's MRI is June 24th. I know you do not know what to say. I am also at a loss for words. When Emma was diagnosed with Neurofibromatosis 1 we knew that her identical twin would share the disorder. We also knew that Gracie had some complications at birth that may come back to her at on older age. The fact of the matter is Gracie could very well end up with brain tumors and challenges related to her birth. Why now? Every doctor we talked to about Gracie wanted to wait until she was at least 4 years old to test her further. So here we are, three kids...one with cancer that has no cure and one entering the hospital for her own battle.

What does this mean? It means that I will be at the hospital twice a week with Emma for chemo and occupation therapy. It means I will also be at a hospital or other facility at least once a week for Gracie's rehab. It means Gracie will also visit the Genetics Specialist, Oncology team, and Neurologist. It means that if Gracie has brain tumors two of our three kids will be fighting the cancer dragon. It means we will live in hospitals...even more so then now.

How will we do it? I have no idea. No really. No idea. I have no game plan. I have nothing. I just know that we will need help but until Gracie is diagnosed I am not sure how much or what kind. Until June 24th I am staying busy trying to raise funds for the loads of more medical bills to come. We have the She's a Fighter Auction starting on June 1st. Once that is over I will be opening a small boutique for the dresses I have been making. All the profits will go toward gas, babysitting, and house cleaning.

Some of you have asked how you can help. I wish I knew. My request is to use your best judgement, if you feel you can help in someway then we accept. We still ask that if you run a fundraiser you get approval from us first but other then that the answer is yes, we accept.

I really hope this is the darkness before the dawn...

No comments:

Post a Comment

Thank you for your comment, because this is a child's blog Emma's Mommy will read your comment and approve it before it is posted.